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Showing posts with label Leukaemia. Show all posts
Showing posts with label Leukaemia. Show all posts

The 8th pint, a dead freezer, and cherry & almond crumble

I keep thinking that I've reached a point in my life where I no longer think about Blue being ill very much, and then something happens to make it all come rushing back like a steam train. 



I certainly don't think about it every day any more, and it's not the first thing (nay, the only thing) that I'll talk about any more. Chances are, if I met you for the first time in person, these days, it would take a good few conversations before it actually came out that he'd been ill at all. There was a time when it was literally all I could talk about.

Fortunately, even the 'steam train' moments are becoming less and less frequent, and usually triggered by something other than a panic that he's relapsed - which was what usually used to make me think about it when he first came off his chemo. The lovely nurse who cared for Blue on his first terrible night in hospital - when we really thought he was dying before our eyes - lives in the same village as us. I see her often these days - she has 2 adorable girls now herself, and I can actually talk to her in the street without crying. I have come a long way.

I gave blood earlier in the week. This always reminds me of the bad times, but more so than ever this time, when I realised that I'd donated my 8th pint - equivalent to all the blood transfusions that Blue had during his treatment. I came over a bit funny and had to have an extra long lie down, and a bag of crisps as well as a pack of fruit shortcake biscuits and 2 glasses of the rather lurid lemon squash they hand out before I felt strong enough to wander home.

Fortunately, tea was pretty much already organised - one of our freezers gave up the ghost at the weekend, leading to a frantic reassessment of what we could chuck and what we could redistribute amongst the 2 other smaller freezers that we have, already pretty full. Bear in mind that we didn't have the option of cooking and re-freezing anything: if it couldn't be eaten then or in the next couple of days, or rehoused, it would have to go. Out went the swede soup dated 2010 and various small pots of unidentifiable stuff that had been in there so long the hastily scrawled labels had worn off... It's always slightly embarrassing, being presented so starkly with one's hoarding tendencies, but I've decided to rise above it. On the plus side, we've eaten the lamb shanks, some of the more identifiable soup, and lots of rhubarb. Blood donation evening, there was more identifiable soup and a fish pie. When Blue was ill, I had to cook fresh for him every day, regardless of how tired I was. I'd never have been able to feed him fish pie from the freezer.

More importantly than my inability to throw food away, do you remember all those delicious cherries I scrumped, back in the summer? I was so utterly delighted with the possibilities they presented, that while I was deliberating what to make, they pretty much all got eaten just like that from under my nose.



I managed to salvage some after a marathon stoning session (stoning the cherries - what did you think I meant?) and stashed about 800g away in the freezer for another day.

Well, 'another day' arrived - they were in the freezer that packed up, along with the fish pie and the lamb shanks...

I absolutely couldn't bring myself to chuck them out, despite the fact that they were scrumped as opposed to produced as a labour of love by the Husband in the garden - for start, they'd only been squirreled away for a matter of weeks - unlike the swede soup - and the stoning had taken a good couple of hours of my life, and given me black finger nails for a few days. On the other hand, as scrumped produce, they came lower down the priority rehoming list...

No longer luscious purple but rather duller, with much of the juice leached out of the fruit, although saved in the bowl they had defrosted in, they still tasted good. I thought pie, but couldn't face pastry. And anyway, to make a pastry worthy of my cherries, I needed an egg yolk, and as my chickens have completely given up laying, preferring to moult drastically and unattractively all over the garden, and I was feeling too weak after the blood donation to walk up to the butchers and buy some, I had to think again. I could have made jam but I wanted something lovely for pudding. Crumble was the obvious choice. 

Comforting, homely, and in honour of Blue (who adores cherries and crumble) and all he went through in those dark days of leukaemia, and in recognition of the 8th pint, cherry and almond crumble it had to be. 

Cherry & Almond Crumble

800g frozen cherries, defrosted, along with any juice that has leaked out
1.5tbsp cornflour
50g caster sugar
good pinch of cinammon

100g plain flour
80g porridge oats
40g ground almonds
100g demerara sugar
75g unsalted butter

Put the cherries and juice in a pan.

In a small bowl/cup/ramekin, mix the cornflour with some of the cherry juice, then tip pack in to the pan, along with the sugar and cinammon. Heat gently, stirring, till the juice all thickens up, simmer for a little, then scrape the cherries into your crumble dish and leave to cool.

Pre-heat the oven to 180C.

Make the topping by rubbing together all the ingredients into a rough, crumbley scrummy mess. Try not to eat it as it is - hard as it is to imagine, it WILL taste better baked.

Spread the topping evenly over the cherries then pop in the oven and bake for 20 minutes or so till the fruit is hot and bubbling and the crumble is golden brown.




Cherries and crumble both qualify, I'm sending this to this month's Alphabakes challenge hosted by Ros at More than the Occasional Baker and Caroline at Caroline Makes

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Why Katie Piper made me cry

Ever since Saturday morning, when I blubbed shamelessly as Katie Piper talked frankly to a packed, and silent, Britmums Live audience, and then even more so, talking to her mum and Katie Hill (teary, tissue-less and overwrought, never have I felt less glamorous, let me tell you), I have been pondering why exactly she made me cry.

It's not just her story - the beautiful good time girl, going places (possibly - she is refreshingly candid about the career opportunities available presenting casino programmes on channel 999 at 2 a.m.) raped and then burned horrifically with acid thrown over her at the behest of a man who couldn't have her.


It's not just the fact that she can - and clearly throughout her recovery, did, laugh at her situation. Not at all of it, but at the comical moments that can often - and almost totally inappropriately -  come in times of great trauma and distress, She tells a cracking story about squirting blackberry juice out of the feeding tube attached to her stomach while wearing a flesh coloured 'morph suit' (her 'earthworm Jim suit' - to stop the burns contracting) - but I guess you had to be there.


It's not just the fact that she has taken what has happened to her and survived in the most inspiring way, turning her experiences into a charity to support others who have been burned, filling gaps in the NHS provision, which, with the best will in the world, public money cannot currently cover.

It's not just that she is so disarmingly honest about the support she received from her family, about how dark the really dark times were, about how cruel people were to her, and about her agoraphobia.

All these things make her a truly remarkable survivor. It puts my life and the things that have happened to me sharply into perspective. But here's the thing. She gets annoyed when people start talking about something bad that happened to them and then they say "Oh but it's nothing like what you have been through". Why does she get annoyed? Well, you see as she puts it - it doesn't matter what 'it' is - if it's your worst thing, then yes it is bad, it is worth getting upset about.

What trauma have I suffered. Well let me tell you - if you didn't know already - my son had leukaemia. My lively 2 year old withered before my eyes, almost overnight. 9 months into treatment, he had no hair, was on the 2nd centile (from 98th when born) and the doctors were talking about feeding tubes. We spent endless hours in hospital. The drugs made him sick. He had blood and platelet transfusions. He had a terrifying allergic reaction to one of his drugs. I thought he might die. My son.

He had the disease. The Husband and I - we dealt with the fall out. And a new baby.

People say similar to me when talking about their children. People who have had what I consider to be equally traumatic experiences, or even people talking about a broken arm. They say "Oh but it's nothing like what you went through". Or they say "I don't think I could have got through what you did". To that I say, firstly, as Katie Piper says, it doesn't matter what it is - if it's the worst that you have had to deal with, then it's bad. It's not a question of degree. It is valid to feel distraught, lost, confused - even if you're dealing with chicken pox. 

Secondly, and perhaps more importantly, you do have a choice. You can drown in the injustice of it all, or you can try and work out how to cope and get through it. I know someone whose son was at a similar age, living in the same village who died of a brain tumour when Blue was being treated. She and I were pregnant at the same time and gave birth to our second children within days of each other. She told me once that she thought she was lucky because I still had the uncertainty of whether Blue would survive hanging over me. She knew, so sadly, how her son's story ended, and she thought she was in a better position than me. I have never spoken to her about it, but I suspect this was one of her ways of coping. 

I consider us to be lucky. Not that Blue became ill - I wouldn't wish that on anyone. But he's still here. We just passed the 4 years "off-treatment" point - one more to go before we'll get as much of an 'all clear' as they will give us. I haven't lost a child, been physically attacked or suffered any of the other terrible things that can happen, although if you want dark hours, I can give them to you in buckets. The important thing is that he has survived.

We are lucky too, to have survived as a family. Lots of people don't. Families break up under pressure, and it's hard, so hard to keep lines of communication open when you've been awake all night worried sick about your child, or had to go to work and leave your child as he goes into an operation because of a meeting you can't afford to miss. It's hard because day to day life becomes more difficult on every level physically and financially - do you know how expensive hospital parking is? You have to make decisions you never thought you would be faced with. It's hard but you choose to make those decisions in order to survive.

We had a choice, and what made me cry was hearing someone else who has survived - and is possibly still surviving - talking so eloquently about her choice. Katie Piper demonstrates so simply and so beautifully that you DO have a choice. Even in the darkest hours of your life, you can choose to be beaten by it all, or to fight. It takes a lot of energy and support, and it's not easy, but you can do it, be your injuries physically or emotional, whether you're the person who's been hurt or someone supporting and caring for that person. 

And the relief of hearing someone else say all that made me cry.
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